Spectrum is working with health researchers at Wilfrid Laurier University, in partnership with the AIDS Committee of Cambridge, Kitchener, Waterloo & Area (ACCKWA), on a new grant funded research project called the “Waterloo Region 2SLGBTQ+ WELCOME Study” led by Dr. Todd Coleman, Associate Professor at Wilfrid Laurier University. This project aims to assess 2SLGBTQ+ needs in Waterloo Region, given that our community has largely been ignored in the context of health research. We wish to better understand the needs as well as the health and well-being of our community and offer programming and policy solutions to improve health outcomes. 

The research will include a 40-minute survey and a qualitative interview to understand 2SLGBTQ+ experiences about community health, health status and behaviour over the life-course, healthcare and social service access, safety, and social support. It will also include consultative engagement with health system stakeholders. 

The Waterloo Region 2SLGBTQ+ WELCOME Survey is part of a multiphase grant funded project aiming to conduct a 2SLGBTQ+ needs assessment to advance the current understanding of the general health landscape of 2SLGBTQ+ identifying persons who live, work, or reside in the Waterloo region. The results of the survey will help inform the latter phases of the study and be disseminated to our constituents as part of our knowledge translation activities in different formats.  

Once the information has been collected, analyzed and distributed (e.g. at community meetings, reports, academic publications), the research team hopes to work with the community on initiatives that promote the health and well-being of 2SLGBTQ+ populations in Canada 

We are seeking participants who:

• Identify as 2SLGBTQ+ 
• 16+ 
• Live, work, or reside in Waterloo Region 

If this is you and you’d like to take the survey, . Note that the password is “welcome2023”. If you have questions or would like to be considered for an interview, please connect with Robert Chin-see (he/him).

This study has been approved by the Research Ethics Board at Wilfrid Laurier University (REB# 8419) 

In Spring 2023, Waterloo Region Family Network (WRFN) and Spectrum Waterloo Region’s Rainbow Community Place (Spectrum) came together to assess the need for supports for the trans-autistic community. Trans and autistic communities face their own unique challenges navigating society. Trans individuals might experience transphobia, barriers to accessing public spaces, and threats of violence while autistic individuals can experience ableism, lack of accessibility and/or accommodations, and other forms of systemic discrimination. When someone is both trans and autistic, the discrimination they face is compounded – meaning any support given to this community is incomplete if it does not consider the intersections of their identity.

Interviews and surveys were conducted to gather insights from the community to help inform the establishment of potential programming for the trans-autistic community. We were so fortunate to work with Cayden Genik on this project. Cayden played an instrumental role in conducting interviews, research and report writing. Cayden’s full report, Establishing Effective Trans-Autistic Support, can be found here.

Our Objective

This collaborative project sought to acknowledge the increasingly visible intersection between autism and gender divergence, elevate the voices of autistic and/or trans community members, assess the need for programming, and establish next steps to implement potential programming.

Our Method

We connected with the trans-autistic community through three group interviews (one in-person and two virtual) and an online survey. All information collected was anonymous. We had a total of sixteen participants, some of whom were members of the trans-autistic community (either with formal diagnosis or without) while others were parents of individuals in this community. While we valued all insights, emphasis was given to voices of those within the trans-autistic community themselves.

Common Challenges for Trans-Autistic Individuals

When speaking with those belonging to the community, many common themes began to emerge:

• Lack of overall support at the intersection of autism and gender divergence.
• Uncertainty of where to access informed resources.
• Difficulty finding others within the trans-autistic community.
• Lack of racial diversity in community programming.
• Lack of safe, social spaces for the trans-autistic community.
• Preference to engage in programming carried out by individuals with lived experience.
• Preference for reliable, in-person, drop-in programming that requires little commitment.

When speaking to the parents of those belonging to the trans-autistic community, the following themes were identified:

• Virtual programming made it difficult for their children to connect and engage.
• A lack of access to resources and information.
• Need for a safe, social space where their trans-autistic children feel represented.

When asked about the challenges they have encountered, those identifying as autistic and/or trans shared the following:

• Society has a limited understanding of what autism is, thus contributing to the incorrect belief that all those with autism have reduced mental capacity.
• Transness is often invalidated in the presence of autism.
• Systemic discrimination, microaggressions, and stigma.
• Navigating as non-binary in a binary world.
• Fear of taking up space (i.e., not being trans or autistic enough to fit in with each individual community).
• Lack of moderated gatherings and safe spaces to meet other individuals belonging to the community.
• Lack of support in communication and accessibility needs.
• Lack of racial and neurodiversity in community programming.

Need for Inclusive and Flexible Programming

Out of all autistic and/or trans participants, only five had experience with existing programming. Those that commented on their experiences with programming shared that they valued having the ability to learn about themselves and connect with peers in a safe space where they did not feel the need to justify their existence. In addition, these individuals shared the following critiques of their experiences with programming:

• Cisgender folks have made formal attempts against programming in an attempt to have it disbanded.
• Organizations often assume what the community needs without getting them involved in the conversation.
• Difficulty in meeting criteria for in-person programming (e.g., formal diagnoses, non-binary exclusions).

Next Steps

Through our collaboration, interviews, surveys, and research gathered by Cayden, it is clear there is a need in our community for a specialized program for the trans-autistic community. WRFN and Spectrum will continue to work together to build a program to address the unique needs expressed by our local trans-autistic community.

As Cayden highlights, effectively supporting this diverse community involves constantly revising current practices and seeking ways in which they can be improved. With the guidance provided in Cayden’s report, we aim to create programming that is led and informed by those with lived experience where others can feel understood and have access to reliable resources.